10/10/2004 - For you to understand my journey, you must know that I am on the verge on starting my pastors ordination. I was never closer at this point in my life to God. I knew what I wanted to do, and I thought that I had it all planned out. Well...... God had different plans, not bad plans, just different plans.
10/13/2004 - Started pastors classes.
10/17/2004 - Last night I had a race with my son. I woke up with very sore hips. I thought that it was just because I getting older, and I was trying to prove that the "old man" still had it in him. I did not think much of it, as I have weight lifted for many years. (I won Mr. Idaho Bodybuilding)
10/25/2004 - Muscle were still VERY sore. The soreness and pain was starting to move to other body areas. I also noticed that I had a little rash coming on. At this point I thought that I had a flu or some kind of a bug. My weight was 210lbs. I say this because at the lowest point of the disease I weighed in under 120 lbs.
10/29/2004 - Pain is getting VERY bad, my body just aches. It was strange, I did not feel sick (Flu like) but I just HURT. The pain moved from my hips, to my back, chest, shoulders, then to my legs. I found that Dermatomyositis moves around and attacks different muscle groups. Dermatomyositis attacks symmetrically ie. both hips are sore, both shoulders are sore. Dermatomyositis usually does not attack just one side.
At this point I am freaking out. I have gone to the hospital several times. They cannot figure out what is wrong with me. I tell them I am in pain, and they look at me like I am crazy. They started me on pain meds. (This is important as we will discuss later on). Dermatomyositis is attacking FAST and HARD!
11/10/2004 - Went to the hospital again. Kim and I am very frustrated at this point. There is something very wrong with me, but NO ONE can figure it out. Except one Dr. who God gave wisdom too. He suggested the we do a muscle enzyme test. GREAT another test, just what I need. Well, he tested me, and my muscle enzymes are through the roof!
You see, if you have ever worked out and you are really sore the day after, your count is about 300. Mine was 14,000. Can you imagine the pain I was in?
The Dr. told me that I might have Polymyositis or Dermatomyositis..... Huh? I can even say the dumb word, how can I have it? I was also told this was a rare and freak thing. I was told that my immune system attacks itself and eats away my muscle ie. muscle wasting disease. The Dr. at the hospital referred me to a rheumatologist. (Finding the right Dr. is a MUST, as we will discuss later) I left very scared, and alone..... what did this mean for me Death? Wheelchair? HELP LORD!!!!
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